Autism Home Healthcare Staffing Realities

Autistic young adult requires frequent 2:1 to 3:1 supports, as needed during behavioral or medical emergencies. Home health care staff ratio needed NOT yet provided by state of California. Family still in negotiations. Case should be a NO BRAINER for anyone involved in discerning if this is the kind of unique, aytpical case that requires at LEAST 24/7 1:1 in-home family support. autismus EMS law enforcement autism awareness educational videos autisme “autismul” “awtismo” “nursing” “nurses” “caregivers” “cna” “lvn” case law least restrictive environment “disablity rights” “california” “protection and advocacy” “los angeles” “san diego” “sacramento” “autism legislative taskforce” “autism news” “autism facts” “statistics” “research” “case study” “attorneys” “lawfirms” “litigation” “advocates” “injury” “judges” “decisions” Autistic boy’s mother may sue state california pervasive failure to provide adequate services to autistic boy with extreme self-injurious behaviors and seizure disorder leaves family exhausted in constant battle for proper in-home support and relief. Family forced to create behavioral and nutritional plans due to state “experts” repeatedly failing to provide or meet extraordinary needs of this autistic person. It’s simply unreal that after the family has had to pick up where all the “professionals” dropped the ball, they are insulted and tormented with lack of proper home supports.

Duration : 0:11:0


Post Author: mark

23 thoughts on “Autism Home Healthcare Staffing Realities

    julie575

    (October 5, 2010 - 9:25 pm)

    Yes! Even if …
    Yes! Even if legislators don’t CARE about the home being the LRE and don’t respect the basic “human right” (for lack of a better term?) of the severely disabled individual being in an environment surrounded by loving family you would think they could figure out the financial equation! If a stable family is emotionally able (like yours) to treat the loved one with supports why on earth would they want to institutionalize them? Also, the caregiver in this video (a nurse?) is extraordinary!

    MrBigbosslady

    (October 5, 2010 - 9:25 pm)

    @kgaccount Thank …
    @kgaccount Thank you, after seeing a lot of your videos i have gotten a “second wind” Im trying. Please keep your videos coming, Right now i feel your videos are the help for me right now. Thank You

    kgaccount

    (October 5, 2010 - 9:25 pm)

    @MrBigbosslady You …
    @MrBigbosslady You fight to get the help you need. And in the interim, stay strong and press on.

    MrBigbosslady

    (October 5, 2010 - 9:25 pm)

    WHAT DO YOU DO WHEN …
    WHAT DO YOU DO WHEN U CANT GET ANY HELP! IT’S JUST ME?

    FTWinnable

    (October 5, 2010 - 9:25 pm)

    How terrible …
    How terrible watching him cry =/

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @ …
    @MrPhillipsamuel1992 He was ‘frustrated.” His severe autism limits his abilities to communicate what is going on. No doubt his mind is under attack and it prohibits him from telling us what exactly is going on. That’s why it’s important for him to be observed and cared for by a “team” of nurses, us, and others who “understand” what his unique and individual needs are. It’s just too hard for outsiders to come in, do a drive by analysis and give suggestions. They don’t get it,, until we show them.

    MrPhillipsamuel1992

    (October 5, 2010 - 9:26 pm)

    why was jamey …
    why was jamey crying?

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @kgaccount. I guess …
    @kgaccount. I guess the reality is I have to personally tscreen and train each nurse who comes out and then monitor to ensure they can handle Jamey. The state can’t train them. The state can’t monitor them. The state can’t handle Jamey. All I need is state to provide nursing coverage and I’ll do the rest of their job, which is behavioral/medical and case managment things I’ve been doing for years anyway. Oh, Jamey has a wonderful state case worker. She’s what a social worker should be: caring.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @happymark1805 Yes …
    @happymark1805 Yes, a behavioral specialist told me sometimes when autistic adults begin to “make progress”, or they are “learning more” or “coming out of shell” their behavior actually gets “WORSE” since they are now seeing a world around them as terribly confusing and foreign. I don’t know if that’s case, but it’s possible. Jamey LOVES to be driven around in car and go places, but we have to have 2:1 in these situations and we still don’t have 1:1 support.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @ASDogGeek There …
    @ASDogGeek There is massive shortage of qualified cna’s for Jamey, so found this young man as emergency back up when other 2 unqualified cnas failed. And agencies had NO back up cnas. He’s a medical assistant. Yet, he’s better than the cnas! Just shows how matching Jamey with right person helps. But, it is critical we have majority LVN because cna and Ma’s can’t give meds. I can’t use state voucher for people who aren’t cna’s so we pay outta pocket, again!@ I’m working on new team of nurses

    crazyboafrog1986

    (October 5, 2010 - 9:26 pm)

    Hi Jamey its me ( …
    Hi Jamey its me ( your friend Anna from Missouri ) i just wanted to say im continuing to pray for you and i. i also wanted to say thank god that you & your family were able to have 2:1 care that day . but jamey i would suggest not to bite cars , that will hurt your teeth . hang in there bro , im here for you and your family .

    Karenatx4

    (October 5, 2010 - 9:26 pm)

    This video made me …
    This video made me cry,his cry is heart breaking.My son has full seizures where he is not breathing for 10 minutes (diastat used)he also does alot of the bouncing just like Jamey. Jamey really needs 2:1 and the best nurses.Well THANKS for keeping us updated your videos inspire me.GOD BLESS

    happymark1805

    (October 5, 2010 - 9:26 pm)

    Thats strange Jamie …
    Thats strange Jamie seems to want to put his anger on the cars arround, I do’nt know if his brother may drive cars but it meight be that he is frustrated that he can not drive them, might be a stupid idea from me but that is what it looks like.

    If that is the case he is picking up alot more than Jamie shows.

    ASDogGeek

    (October 5, 2010 - 9:26 pm)

    will the new CNA? …
    will the new CNA? be with you permanently? He seems like such a wonderful fit. He also ACTUALLY CARES about Jamey unlike the other CNA. Witch of the dogs is the one who seems to respond to Jamey? Was it one of the one following him?

    duffalex24

    (October 5, 2010 - 9:26 pm)

    I’m just glad that …
    I’m just glad that Jamey is ok. That day was something. Jamey is a great kid and has great parents to watch an care for him. I’m glad you and husband were out there to help and I appreciate it.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @aspie1966 One guy …
    @aspie1966 One guy is my fabulous husband, who was trying to “relax” in the house, when he heard me say, ‘IS HE TRYING TO BITE THE CAR?” The other is a major blessing and who came into our lives in the nick of time to provide emergency relief and support. He is a really smart, capable young man who has just amazed us with his ability to learn how to help with Jamey.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @tommyw8576 I’m …
    @tommyw8576 I’m sorry to hear how U were treated. Your mom obviously had challenges. She probably loved you more than U will know, but was under seige in her own mind. YES, SSRI can be helpful. We still give Jamey 5-Htp, which does help, but as I’ve always said, IF he gets even the slightest cold, abrasion, etc..that causes him discomfort, NO drug will stop the sib.

    tommyw8576

    (October 5, 2010 - 9:26 pm)

    Self Injury …
    Self Injury Behavior can also happen with us “High-Functioning” Autistics with Asperger’s Syndrome. I am on an SSRI Type Antidepressant, Lexapro which has helped, yet, as an Adult, I have myself had issues with self-abuse hitting. I was raised by a parent, my Mom, who was for decades uncontrollably psychotic. Her way of “dealing” with me & my “milder” Autistic behaviors/cognition, was @ times “violent” psychotic beatings of me, to “make me “behave correctly”.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @aspie1966 He’s got …
    @aspie1966 He’s got a really sweet heart and has military background, which is usually helpful.

    aspie1966

    (October 5, 2010 - 9:26 pm)

    thank God those 2 …
    thank God those 2 guys were with him, and not some idiot that just wants his check 🙂 That male CNA (?) in this video must be a God-send.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @kgaccount And it’s …
    @kgaccount And it’s NOT really the autism that is hellish. It’s dealing with apathy and ignorance of others that makes it so painful. These top officials see what your family and other families go through, they have the power to help, and they choose to do nothing. Or the bare minimum.

    kgaccount

    (October 5, 2010 - 9:26 pm)

    @crystalmichellez …
    @crystalmichellez You sound like UR an amazing sibling. U will be something and someone powerful and with great purpose because of all this suffering. It teaches you things that you can’t learn outside this kind of hell.

    crystalmichellez

    (October 5, 2010 - 9:26 pm)

    seeing him cry …
    seeing him cry breaks my heart…he is soo precious and you and your family are simply amazing. i know how it is because my family and I go thru the same exact things with my brother who is severly autistic. No one will truly understand how it affects your life in everyway until you go thru it first hand.

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